Katie Myers lives in Palm Beach with her husband and young son, Kaden. When he was born, Katie didn’t think that anything was wrong. He was happy and full of life, and their little family felt complete. Months after his birth, however, left Katie feeling terrified. Her infant son wasn’t meeting his milestones. When other babies were learning to roll over and sit up, Kaden continued to lie flat.
At 1-and-a-half, she realized that he isn’t going to develop as quickly as other children, if at all. She regrets comparing him to other children, but took him to several doctors until they gave the chilling diagnosis: spinal muscular atrophy, type 2. The boy would never walk without help, and he would not grow old.
But slowly, her little fighter learned to sit up and raise his arms. He learned to use a wheelchair. He may not be as fast as the other children his age, but he has no less love and joy for life than they do.
To the little boy at the science museum, I don’t know who you are, but thank you for being amazing. You let my son play and engage with you. You helped him pick up balls from the floor when you saw that he could not. You didn’t ask what was wrong with him or why he couldn’t walk, you just saw him. Kaden is a lot like you, he is very curious and wildly smart. He wants to know how everything works. Thank you for helping him turn the lever when you noticed he was too weak to do it himself. You will probably never see this but just by being you, you make this world better.”
Katie wants other parents to know that while there is nothing wrong with asking questions, it was a carefree time that gave her joy. Seeing her son playing with another child normally, treated equally, was a feeling that meant a lot. She wants this mysterious boy’s parents to know that they have raised an excellent child.
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