Chad and his wife were ecstatic to learn that they would soon become parents, but that joy was short-lived when doctors told them that he had developed Wolf-Hirschhorn syndrome. The condition left him with a cleft lip, a cleft palate, and a tiny frame. So tiny, in fact, that his parents couldn’t find newborn clothing small enough to give him. They ended up using the clothes from a Cabbage Patch doll.
The doctors said that his small frame and disfigured face was not the only concern that they had. This specific syndrome affects 1 out of every 95,000 births and results in delayed growth, intellectual disabilities, and seizures. They did not expect the infant to live past the age of 2.
Chad didn’t want to get close to his son, at first. He knew that it would be difficult to lose the child and thought that keeping him at arms length would make it easier somehow…but that sentiment quickly disappeared when he held his son in his arms. How could he live with himself, knowing that he didn’t give this child every ounce of love possible?
They named him Dallan, and that baby grew…and grew…and didn’t stop growing well past the 2 year time frame that the doctors had predicted. He has the mental capacity of a 2-year-old, but never grew sick like the doctors though.
So, when his son turned 30, he told his friends that he wanted to plan 6 weeks packed full of 30 fun activities for the two to do together. So far, they have gone to the National Ability Center in Park City, Utah and several other kid-friendly activities every single day.
He plans for this to be the trip of a lifetime!